Entry Gallery
Alan G.
Newton Highlands, MA
Nominated by Lucy Dechene, Ph.D.
Volunteered for:
Massachusetts CFIDS/ME & FM Association
International Association for CFS/ME
The Clifford Beers Guidance Clinic
Length of Service:
More than five years
Hours per Month:
40+
March 14, 2012
We are pleased to nominate Alan G., M.D., president of the Massachusetts CFIDS/ME & FM Association, which provides education and support to patients in Massachusetts who live with the Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and Fibromyalgia, both severely debilitating and much misunderstood illnesses. Alan had been involved, off and on since 1988, with the Association, but had been inactive for a while when we called on him to help out again in 2007. A few volunteers had been maintaining all of the services for many years, but could no longer do so without additional assistance. Alan, then retired, aged 77 and a patient himself, agreed to form a committee to see what could be done, and also agreed to serve "temporarily" as President. He has spent an average of 23 hours per week working for Mass. CFIDS since 2008.
In the 4 years of Alan's leadership, the Association has developed a new website which has an international reputation for comprehensive patient information, has grown from 5 to 40 volunteers, from a handful to over 100 members with a newsletter mailing list of 690, restarted a public statewide educational lecture series and obtained a significant grant to ensure operations for at least 5 more years. He has formed close working relationships with similar patient organizations in neighboring states, and also reached out to policy makers at the national level (including Dr. Elizabeth Unger of the Centers for Disease Control) to advocate for patients with these illnesses and for better physician education.
At the same time, Alan was an important volunteer for the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, a worldwide group for researchers and physicians. As Alan has said, "Seeing the need in Massachusetts and other states for better physician education, I urged the creation of training materials for clinicians [by the IACFSME]." As a result, he has spent more than five hours a week since 2010 as a key member on an international committee developing a Primer for Health Care Professionals to provide guidance on how to diagnose and treat the Chronic Fatigue Syndrome. This has just been completed and will be distributed worldwide.
As a former medical director of the Clifford Beers (child) Guidance Clinic in New Haven, CT, he was also asked by the clinic to help write a history of the first 68 years of its existence. All of the authors expect to finish the history next year.
These activities not only have benefited the estimated 27,000 CFS/ME patients in Massachusetts, but will also help physicians and patients throughout the U.S. and in other countries. For 4 years Alan has devoted almost full time to this work, driven by a desire help the Association accomplish its mission of supporting and providing assistance to patients and their families while working and advocating for effective medical research and treatments that will both alleviate patient suffering and lead to a cure.
As Alan has said, "The three organizations I have worked with have provided much pleasure and fulfillment, working with wonderful and interesting people and accomplishing concrete results in a team setting. I feel extremely lucky to do what I have been doing. I really haven't left medicine, I am just doing something different."
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Comments and stories from others
Comments are closed for this entry and all 2012 entries.
U.S. Site
March 14, 2012 at 22:20 pm | Posted by Rita Sanderson
The Massachusetts CFIDS/ME & FM Association has gained new direction, positive leadership, and consequently, many accomplishments can be directly attributed to Alan's position and work with the organization. Not only does Alan bring many years of medical expertise and understanding of the illnesses, but a vision, passion, conscientiousness and a deep concern about others - those who suffer because of ignorance, indifference and unfair treatment, medically and socially - especially the children/youth who have learned to cope with many hardships so early in their lives, which has greatly inspired and encouraged all of us serving on the Board and/or as volunteers, and is reflected in the outreach services that we strive to provide.
Alan G. is an exceptional human being, a hero in every sense of the word, and most deserving of this award.
March 15, 2012 at 12:05 pm | Posted by Donna Pearson
& FM Association.
His extraordinary persistence and determination is not only encouraging, but is highly motivational as well. The fact that Alan is a senior dealing with his own health issues only serves to demonstrate just how remarkable his efforts and accomplishments have been. Four years ago, the organization was led by a handful of dedicated volunteers who were unable to sustain the work involved. Despite numerous challenges and obstacles, Alan’s successful leadership-style facilitated tremendous growth and numerous achievements. The Association is now managed by a 15 person Board of Directors with two vice-presidents, a treasurer and clerk, four program coordinators, numerous committees, and dozens of volunteers.
In my opinion, Alan is an exceptional senior volunteer and has more than earned the title “Senior Hero.”
March 15, 2012 at 12:46 pm | Posted by Charmian Proskauer
March 15, 2012 at 15:54 pm | Posted by Lorraine McDonough
March 15, 2012 at 21:40 pm | Posted by Silas W. Sanderson
March 16, 2012 at 15:15 pm | Posted by Nancy Smith
Dr. Gurwitt has a lot of credentials to his credit but he is loved and admired most by those of us who work with him. Through his world-wide contacts, and medical knowledge, he has been a champion for patients everywhere. I strongly endorse his nomination.
March 17, 2012 at 12:18 pm | Posted by Pete Cuttin
March 29, 2012 at 13:20 pm | Posted by barbara saltzstein
that i have ever met. he has been endlessly available to
many of us: as patients, colleagues, friends. alan has
been involved with ma. cfids since the early 90's when he helped organize a group of health care professionals with cfids to share
our experiences and to educate others. he is truly the epitome
of a senior hero. it is difficult to find words that fully describe
the impact alan has made on so many lives. I cannot imagine
anyone else who has given so tirelessly and with enormous
compassion who deserves this award more than alan.
March 30, 2012 at 20:28 pm | Posted by Justin Reilly, esq.
Justin Reilly, esq.
M.E. Law & Policy Center
March 31, 2012 at 17:27 pm | Posted by Gingues
Thank You Dr. Gurwitt!
April 3, 2012 at 18:39 pm | Posted by Lori Chapo Kroger
April 3, 2012 at 23:07 pm | Posted by Rebecca
April 4, 2012 at 01:04 am | Posted by Faith Wong
April 5, 2012 at 23:32 pm | Posted by Pat LaRosa
April 10, 2012 at 17:38 pm | Posted by George